Mon, Sep 21, 2020
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Family time for The Buckley's

The Buckley family consist of Mum, Dad and 4 boys Cian, Alex, Dylan and Charlie. However, unlike most “normal” families three of the boys Cian, Alex and Dylan and their Dad have a genetic condition called Neurofibromatosis type 1. It is a rare genetic condition and presents differently in each person.

14yr old Cian’s condition is more severe than his younger brothers and at the tender age of 16 weeks Cian suffered his first extensive stroke which caused his right hemepirisis (right sided weakness).

Alex now aged 11years and Dylan now aged 9 years old, both developed cafe au lait spots (birth marks) when they were12 weeks old which are the tell-tale sign of N.F1 as there is no affirmative clinical test. Also, they have severe dyslexia and a significant speech delay but they wont let any of these daily challenges stop them.

Their elder brother Charlie often takes a back seat and he is not just a big brother, he has also become their carer and one of their most important supports. He doesn't often if ever get the true recognition he deserves.

As a family the Buckley’s have gone and are still going through so much. Therefore, as Cian and all his brothers love the W5 and the Titantic and have always wanted to visit Belfast to see both places, Share a Dream surprised them with a magical break to this beatiful city.


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